Tag Archives: operation

Finally Some Good News and the Best News EVER!!

So where do I start these last few days have been emotional, amazing, confusing and basically a haze!!

So to start we had a NG tube put in so that Leya could have top up feeds and put weight on. So she is now on only high energy milk taking 120ml 5 times a day which is amazing and shows as she has put weight on and now weighs 11.5lbs!! This meant we needed to go shopping so our 16week old baby is finally out of tiny baby and newborn and into up to 1 month as 0-3 months is still far to big!!

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Daddy also came back to give me a break as I was physically and emotional shattered and Leya was so happy to see him, all smiles, giggles and snuggles!! And we also managed to get out of the ward when she was cleared of whooping cough but didn’t get far before she threw up all in her new pram yuck!!

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This is where you have to listen carefully!! So if you follow Leya’s facebook page you know that she had a mini operation on Monday. For those of you who don’t know this was to remove a Granuloma and to check there wasn’t anymore! Well Leya was first on the list so she was fasted from 7.15am but didn’t actually go in till 4.30pm so was starving. She finally went in and came back out!! She didn’t come round very well, she was really unsettled which was unusually as this hadn’t happened the last 2 times.

We got back to the ward and she was really pale and clammy all night and her oxygen was rather low so she was on oxygen all night but seemed to pick up on Tuesday.

But the operation went well. She had a Granuloma just inside her throat which was removed and one just at the top of her stoma also removed!! They checked her food pipe to make sure that was ok and all was good then came the news that hit me and Dan like a tonne of bricks!!

HER VOCAL CORDS WERE MOVING!!! Cue the tears 😂 We couldn’t believe it in 1 month they had started to work and she can have the Trache taken out!! OMFG was this really happening. I was apprehensive and wanted them to wait a little longer to make sure all was ok but they put in a size smaller but unfortunately she couldn’t breathe with that one capped. Because Leya is small she needs a small Trache to let enough air pass for her to breathe if they cover it over. So the plan now is to let her grow for a while and then try again until enough air can pass and she is able to breathe on her own!!

But she wont have the Trache for life and for not much longer hopefully. My amazing trooper has managed to heal, grow and strengthen in 1 month and she will be having the Trache out as soon as she is big enough!!

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So with that exciting news she then decided it was time to start to try and roll over but hasn’t yet got the hang of it yet!!

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So keep an eye out for the next blog to see how Leya is doing and where we are in her journey that has a little longer to go!!

Love Dan, Casey and Leya xx

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